Sunday, October 7, 2007

Tomorrow

Tomorrow at 7 am, Noah has an endoscopy, which is basically a scope that will be inserted in his throat and ran into his small bowel. They will collect a biopsy of his intestines to see if he might have some sort of malabsorption disease. He has already had blood work, stool studies, a sweat test(that didn't work), and a bone age scan. So tomorrow should be the end of the testing process to see if something more serious is going on.

The doctor suspects celiac disease, which is an allergy to gluten (wheat, barley, rye). After researching it, I think he might have it too. It will be a BIG change in his diet, but it will provide answers, which will be a relief after all this time of wondering why he isn't gaining much weight. We are all going to do the diet as a family, although I am wondering if Jason will be able to stay away from pizza out in the world!! lol We can still eat pizza, but I would have to make a special crust at home. If his biopsy is positive, it means one of us probably has it too because it is genetic. That person is probably me, since I also have had several symptoms throughout my life.

So I'm nervous about Noah getting anesthesia tomorrow. He had a reaction this summer when he had the hernia surgery. He spiked a fever and developed pneumonia and we had to stay overnight at Vanderbilt. I hope they got his medical records like they said they would, because I don't want that to happen again. We are going to be at UT instead of Vanderbilt for this procedure because the gastroenterologist is in Knoxville. So that also makes me a little nervous, even though Vanderbilt is not a perfect hospital, he's always went there. The doctor reassured me that they were equipped to handle any emergencies, and I hope he's right. If something goes wrong, I will be so mad, one of those irrate mothers who doctors just love to deal with. lol I have told them over and over I am concerned and will do so a million more times tomorrow, so I am hoping that they listen to me and take the neccesary precautions.

Today, we will probably head to Knoxville since we will have to leave at 4 am to get there on time. Noah can't eat or drink past midnight, so the longer he can sleep, the better. He always wakes up wanting his rice milk and I know he won't be happy about not getting his "mik"! So I am going to try to relax and find some quiet time today. I feel like staying busy is the reason I don't have peace sometimes. I just need to be quiet for a while, so I can receive from God. It's hard to hear his voice when we constantly stay busy. So at some point today, I'm going to meditate and receive that peace only He can give.

I pray for a safe trip to and from the hospital. I am praying for a safe procedure, that the doctor's hands will be guided by the Lord's. I pray for Noah's recovery to go smoothly. I pray for answers to come forth, so that we can continue to heal our little miracle. I pray for peace over mine, Jason's, and our family's minds. I pray for additional peace for my mind, lol. I pray that through this trial, I will become even stronger. I thank God for the many blessings He has graced our lives with. In Jesus Name, AMEN!

2 comments:

Mama Bear said...

UPDATE: Everything went well, no major issues that he could see, but we should hear back from the biopsies in a week.

Mama Bear said...

Update #2: After all was said and done, Noah was diagnosed with Lactose intolerance and reflux. Praise God is wasn't celiac, gluten free was not fun while I tried it! BLAGHH! So now we avoid most dairy and his reflux is getting better as a result.