Tomorrow

Tomorrow at 7 am, Noah has an endoscopy, which is basically a scope that will be inserted in his throat and ran into his small bowel. They will collect a biopsy of his intestines to see if he might have some sort of malabsorption disease. He has already had blood work, stool studies, a sweat test(that didn't work), and a bone age scan. So tomorrow should be the end of the testing process to see if something more serious is going on.

The doctor suspects celiac disease, which is an allergy to gluten (wheat, barley, rye). After researching it, I think he might have it too. It will be a BIG change in his diet, but it will provide answers, which will be a relief after all this time of wondering why he isn't gaining much weight. We are all going to do the diet as a family, although I am wondering if Jason will be able to stay away from pizza out in the world!! lol We can still eat pizza, but I would have to make a special crust at home. If his biopsy is positive, it means one of us probably has it too because it is genetic. That person is probably me, since I also have had several symptoms throughout my life.

So I'm nervous about Noah getting anesthesia tomorrow. He had a reaction this summer when he had the hernia surgery. He spiked a fever and developed pneumonia and we had to stay overnight at Vanderbilt. I hope they got his medical records like they said they would, because I don't want that to happen again. We are going to be at UT instead of Vanderbilt for this procedure because the gastroenterologist is in Knoxville. So that also makes me a little nervous, even though Vanderbilt is not a perfect hospital, he's always went there. The doctor reassured me that they were equipped to handle any emergencies, and I hope he's right. If something goes wrong, I will be so mad, one of those irrate mothers who doctors just love to deal with. lol I have told them over and over I am concerned and will do so a million more times tomorrow, so I am hoping that they listen to me and take the neccesary precautions.

Today, we will probably head to Knoxville since we will have to leave at 4 am to get there on time. Noah can't eat or drink past midnight, so the longer he can sleep, the better. He always wakes up wanting his rice milk and I know he won't be happy about not getting his "mik"! So I am going to try to relax and find some quiet time today. I feel like staying busy is the reason I don't have peace sometimes. I just need to be quiet for a while, so I can receive from God. It's hard to hear his voice when we constantly stay busy. So at some point today, I'm going to meditate and receive that peace only He can give.

I pray for a safe trip to and from the hospital. I am praying for a safe procedure, that the doctor's hands will be guided by the Lord's. I pray for Noah's recovery to go smoothly. I pray for answers to come forth, so that we can continue to heal our little miracle. I pray for peace over mine, Jason's, and our family's minds. I pray for additional peace for my mind, lol. I pray that through this trial, I will become even stronger. I thank God for the many blessings He has graced our lives with. In Jesus Name, AMEN!

In the beginning...

In the beginning, Jason and I created Noah....

After Noah was born, our lives changed dramatically. He was born with heart and spine defects and several other health problems that have led us down a very challenging path the past two years. It has made us stonger, full of faith, and determined. I started this blog because I want to share our journey.

Noah's journey of healing is a long story already, full of ups and downs, and is far from over. But his life has a very unique purpose, what he's taught us is only a small fraction of what power his healing is going to unveil! I can't wait to see what God's plan for his life will be. He's a sweet spirit, and everyone who knows him can see it. Some people say, "there's just something about him", and there is. I don't have it totally figured out, and only time will tell what great milestones he will cross.

Noah will be 2 next Thursday, and yes, time has went by quickly, but I feel like I've known this little guy my whole life! I don't remember much about life before he was born, just bits and pieces of things that seem unimportant now. Jason and Noah are the center of my life here on earth, and our journey together will fulfill my life's purpose as a wife and mother. I am so blessed and thankful. Life has been challenging and we are going through a big challenge as I write this, but somehow going back to the core of his purpose here gets me through each obstacle with grace and peace. I constantly pray for peace, because each challenge presents new issues I must face. The hardest part for me has been realizing how little control I have, and as hard as it is to learn and accept, it is one of the most crucial lessons in life. Noah has taught me that, and much more.

I'm not really sure what this blog will transpire into, maybe a tool for me to look back upon on those tough days. I need a reminder, a whisper of truth, when we are smacked down by the ways of the world. So I hope this inspires you to do the same, seeing the truth in times of trial. And that doesn't always mean being strong, sometimes that's not possible, but the truth always remains, and that's what gets me through it all.