This is a copy of the email I sent out in February 2006:
Friends and Family,
Today a wonderful miracle happened! Here’s what happened:
Baby Noah had his monthly appointment for his RSV shot today at 11 am. Last week, I called the nurse because Noah wasn’t eating very good, so she told us to show up to see his heart doctor at 10:30 and they would just make sure he was doing okay and gaining weight. Last Friday I got the automated call reminder about our appointment and confirmed. Well last night I got another reminder saying that our appointment started at 9:45 am, so I confirmed again although I was confused. So this morning as we were leaving I called to let them know that I wasn’t sure what time to show up and the receptionist said that he had an appointment to get an ECCO(heart ultrasound) at 9:45am..so I was like okay, we’ll be a little late but sounds good. His next Ecco wasn’t supposed to be until May.
So we get to our appointment 20 minutes late (imagine that:) and I wasn’t sure if they’d still do it, but they called us back quickly and she did the test. Noah was so happy the entire test...he was holding the lady’s hand and cooing and grinning at me! So they sent us back to the waiting room to get ready for our first appointment. Noah was weighed and measured. He’d gained a pound and grown an inch!! As we were getting some of his vitals, the tester came back and said she didn’t see the VSD(the major hole) and after looking at the last test wanted to do it again to make sure she didn’t miss the view. So we did it again and were sent to an exam room. Instead of his original heart dr coming in, the dr(also a cardiologist) who gives his shot came in and listened to his heart. He said it sounded really good and said the nurse would be in to take some blood and give his shot. So we both looked at him and asked about the ECCO. He said "Oh you had an ECCO done?". So he went and reviewed it and came back with great news!! Noah’s major hole is mostly if not completely closed! He said he could hear a small murmur from the other defects but that tissue had grown across the major hole closing it! The other two defects were also almost closed, but if for some reason they don’t completely close, there is a very minor procedure that can fix them if needed! PRAISE GOD! We never saw Noah’s usual doctor and no one seemed to know how the ECCO appointment happened...GOD wanted us to see that HE has healed our precious baby!
In the beginning we were told that it was VERY unlikely that the hole would close and that he was most likely to have surgery in a year. I listened to their words but never let it penetrate my heart...I knew that my God was big enough!
Everyday Noah and I have a morning prayer and pray for healing in his body. I know mommies sometimes think their babies are doing something special and they are told it’s just coinicidence..but this baby loves to pray and praise God. His whole attitude shifts to a calm attentive baby who smiles everytime I say "THANK YOU JESUS for healing me..we receive it in your name!" When we were in the hospital after his birth and I was lying in the bed in our room down the hall from Noah I laid my hand on my own heart to pray for Noah since I wasn’t holding him and felt a sensation that I can’t explain. God told me then that He was healing Noah and to stay in peace because the day was coming soon that we would be told that his heart was healing faster than anyone expected...and today was that day. I just knew she would tell us that his hole was smaller and when she said she couldn’t see the hole, I wasn’t suprised because I knew God answered the many prayers said for Noah.
So in two weeks Noah will be off his heart medicine, which we were supposed to be on for a year! I hope this testimony renews your faith in our awesome Dad! He loves us all so much and today we witnessed the awesome power of His love. Some people may call Noah lucky, but we all know that this baby is BLESSED! I pray for all of you to feel that faith in your daily struggles, even when you think there is no way God can help you HE CAN and HE WILL! We love you all and thank you once again...your prayers have been answered and we can now rejoice in the awesome healing power of our God.
Jason, Heather, and Noah
ISN’T THAT AMAZING!! I know some people think I am a religious freak, but when you experience the amazing grace God can impart upon your life, you can’t help but PRAISE him. It’s not always popular to give God the credit He so deserves, most of the time people think it’s luck anyway. But I will never cease to recognize where my blessings come from. GOD LOVES US SO MUCH! My baby Noah has really opened my eyes to the love that God has for us. As much as we love our children, He loves us even more and that’s just a hint at how far His love extends for us. So I hope that if you have any situation, big or small, in your life that you will just ask God to help you. He can’t say no..He doesn’t want to say no...that emptiness we sometimes feel is a longing for a relationship with our Creator. That is why we were created...to fellowship with Him. Sooo anyway, I just had to let that out, the more I share it the more excited I get. I can’t wait to post more great news in the future!!
Thursday, December 20, 2007
Sunday, October 7, 2007
Tomorrow
Tomorrow at 7 am, Noah has an endoscopy, which is basically a scope that will be inserted in his throat and ran into his small bowel. They will collect a biopsy of his intestines to see if he might have some sort of malabsorption disease. He has already had blood work, stool studies, a sweat test(that didn't work), and a bone age scan. So tomorrow should be the end of the testing process to see if something more serious is going on.
The doctor suspects celiac disease, which is an allergy to gluten (wheat, barley, rye). After researching it, I think he might have it too. It will be a BIG change in his diet, but it will provide answers, which will be a relief after all this time of wondering why he isn't gaining much weight. We are all going to do the diet as a family, although I am wondering if Jason will be able to stay away from pizza out in the world!! lol We can still eat pizza, but I would have to make a special crust at home. If his biopsy is positive, it means one of us probably has it too because it is genetic. That person is probably me, since I also have had several symptoms throughout my life.
So I'm nervous about Noah getting anesthesia tomorrow. He had a reaction this summer when he had the hernia surgery. He spiked a fever and developed pneumonia and we had to stay overnight at Vanderbilt. I hope they got his medical records like they said they would, because I don't want that to happen again. We are going to be at UT instead of Vanderbilt for this procedure because the gastroenterologist is in Knoxville. So that also makes me a little nervous, even though Vanderbilt is not a perfect hospital, he's always went there. The doctor reassured me that they were equipped to handle any emergencies, and I hope he's right. If something goes wrong, I will be so mad, one of those irrate mothers who doctors just love to deal with. lol I have told them over and over I am concerned and will do so a million more times tomorrow, so I am hoping that they listen to me and take the neccesary precautions.
Today, we will probably head to Knoxville since we will have to leave at 4 am to get there on time. Noah can't eat or drink past midnight, so the longer he can sleep, the better. He always wakes up wanting his rice milk and I know he won't be happy about not getting his "mik"! So I am going to try to relax and find some quiet time today. I feel like staying busy is the reason I don't have peace sometimes. I just need to be quiet for a while, so I can receive from God. It's hard to hear his voice when we constantly stay busy. So at some point today, I'm going to meditate and receive that peace only He can give.
I pray for a safe trip to and from the hospital. I am praying for a safe procedure, that the doctor's hands will be guided by the Lord's. I pray for Noah's recovery to go smoothly. I pray for answers to come forth, so that we can continue to heal our little miracle. I pray for peace over mine, Jason's, and our family's minds. I pray for additional peace for my mind, lol. I pray that through this trial, I will become even stronger. I thank God for the many blessings He has graced our lives with. In Jesus Name, AMEN!
The doctor suspects celiac disease, which is an allergy to gluten (wheat, barley, rye). After researching it, I think he might have it too. It will be a BIG change in his diet, but it will provide answers, which will be a relief after all this time of wondering why he isn't gaining much weight. We are all going to do the diet as a family, although I am wondering if Jason will be able to stay away from pizza out in the world!! lol We can still eat pizza, but I would have to make a special crust at home. If his biopsy is positive, it means one of us probably has it too because it is genetic. That person is probably me, since I also have had several symptoms throughout my life.
So I'm nervous about Noah getting anesthesia tomorrow. He had a reaction this summer when he had the hernia surgery. He spiked a fever and developed pneumonia and we had to stay overnight at Vanderbilt. I hope they got his medical records like they said they would, because I don't want that to happen again. We are going to be at UT instead of Vanderbilt for this procedure because the gastroenterologist is in Knoxville. So that also makes me a little nervous, even though Vanderbilt is not a perfect hospital, he's always went there. The doctor reassured me that they were equipped to handle any emergencies, and I hope he's right. If something goes wrong, I will be so mad, one of those irrate mothers who doctors just love to deal with. lol I have told them over and over I am concerned and will do so a million more times tomorrow, so I am hoping that they listen to me and take the neccesary precautions.
Today, we will probably head to Knoxville since we will have to leave at 4 am to get there on time. Noah can't eat or drink past midnight, so the longer he can sleep, the better. He always wakes up wanting his rice milk and I know he won't be happy about not getting his "mik"! So I am going to try to relax and find some quiet time today. I feel like staying busy is the reason I don't have peace sometimes. I just need to be quiet for a while, so I can receive from God. It's hard to hear his voice when we constantly stay busy. So at some point today, I'm going to meditate and receive that peace only He can give.
I pray for a safe trip to and from the hospital. I am praying for a safe procedure, that the doctor's hands will be guided by the Lord's. I pray for Noah's recovery to go smoothly. I pray for answers to come forth, so that we can continue to heal our little miracle. I pray for peace over mine, Jason's, and our family's minds. I pray for additional peace for my mind, lol. I pray that through this trial, I will become even stronger. I thank God for the many blessings He has graced our lives with. In Jesus Name, AMEN!
Friday, October 5, 2007
In the beginning...
In the beginning, Jason and I created Noah....
After Noah was born, our lives changed dramatically. He was born with heart and spine defects and several other health problems that have led us down a very challenging path the past two years. It has made us stonger, full of faith, and determined. I started this blog because I want to share our journey.
Noah's journey of healing is a long story already, full of ups and downs, and is far from over. But his life has a very unique purpose, what he's taught us is only a small fraction of what power his healing is going to unveil! I can't wait to see what God's plan for his life will be. He's a sweet spirit, and everyone who knows him can see it. Some people say, "there's just something about him", and there is. I don't have it totally figured out, and only time will tell what great milestones he will cross.
Noah will be 2 next Thursday, and yes, time has went by quickly, but I feel like I've known this little guy my whole life! I don't remember much about life before he was born, just bits and pieces of things that seem unimportant now. Jason and Noah are the center of my life here on earth, and our journey together will fulfill my life's purpose as a wife and mother. I am so blessed and thankful. Life has been challenging and we are going through a big challenge as I write this, but somehow going back to the core of his purpose here gets me through each obstacle with grace and peace. I constantly pray for peace, because each challenge presents new issues I must face. The hardest part for me has been realizing how little control I have, and as hard as it is to learn and accept, it is one of the most crucial lessons in life. Noah has taught me that, and much more.
I'm not really sure what this blog will transpire into, maybe a tool for me to look back upon on those tough days. I need a reminder, a whisper of truth, when we are smacked down by the ways of the world. So I hope this inspires you to do the same, seeing the truth in times of trial. And that doesn't always mean being strong, sometimes that's not possible, but the truth always remains, and that's what gets me through it all.
After Noah was born, our lives changed dramatically. He was born with heart and spine defects and several other health problems that have led us down a very challenging path the past two years. It has made us stonger, full of faith, and determined. I started this blog because I want to share our journey.
Noah's journey of healing is a long story already, full of ups and downs, and is far from over. But his life has a very unique purpose, what he's taught us is only a small fraction of what power his healing is going to unveil! I can't wait to see what God's plan for his life will be. He's a sweet spirit, and everyone who knows him can see it. Some people say, "there's just something about him", and there is. I don't have it totally figured out, and only time will tell what great milestones he will cross.
Noah will be 2 next Thursday, and yes, time has went by quickly, but I feel like I've known this little guy my whole life! I don't remember much about life before he was born, just bits and pieces of things that seem unimportant now. Jason and Noah are the center of my life here on earth, and our journey together will fulfill my life's purpose as a wife and mother. I am so blessed and thankful. Life has been challenging and we are going through a big challenge as I write this, but somehow going back to the core of his purpose here gets me through each obstacle with grace and peace. I constantly pray for peace, because each challenge presents new issues I must face. The hardest part for me has been realizing how little control I have, and as hard as it is to learn and accept, it is one of the most crucial lessons in life. Noah has taught me that, and much more.
I'm not really sure what this blog will transpire into, maybe a tool for me to look back upon on those tough days. I need a reminder, a whisper of truth, when we are smacked down by the ways of the world. So I hope this inspires you to do the same, seeing the truth in times of trial. And that doesn't always mean being strong, sometimes that's not possible, but the truth always remains, and that's what gets me through it all.
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